In 1968, Martha Ziegler was preparing to send her 4-year-old daughter with autism to school. So she called her local school district to inquire about the types of programs it had for autistic students.
鈥淭he administrator there said, 鈥極h, we鈥檙e thinking about starting some programs for the mentally retarded, but there鈥檚 nothing for autism,鈥欌�� she recalled. 鈥淥f course, that was perfectly legal.鈥�
Little did she know it then, but that response would propel her into a full-time role as a parent activist, lobbying for state and federal laws to guarantee access to education for children with disabilities. She and other parents have been the driving force behind such laws, and like many others, Ms. Ziegler, a former college English professor, has devoted much of her life to helping others obtain educational services for their children.
Until Congress passed the Education for All Handicapped Children Act in 1975, there was no guarantee that a student with a disability would receive a free and appropriate public education, as the groundbreaking federal law stipulates. Every state and district varied in its philosophy and services for special education.
Parents were the driving factor behind the law鈥檚 passage: For years, they had organized, filed lawsuits, and badgered their local districts to provide educational services for their children with disabilities. Ms. Ziegler was one of the many parents who brought emotional stories to Congress and their state legislatures.
The education path of Ms. Ziegler鈥檚 daughter, Mary Ann, offers a case study on the uneven state of affairs in pre-1975 special education. As the Ziegler family moved, young Mary Ann went from attending a regular public school to a special preschool to a private school. Sometimes, the state or health insurance paid a portion of the costs of her education and related services; other times, the Zieglers bore out- of-pocket expenses.
Massachusetts Law
Finally, the Zieglers settled in Lexington, Mass., in 1971. The state was then embroiled in debate over a new law to guarantee special education to 鈥渢he maximum feasible benefit鈥� for a student鈥攁 revolutionary concept at the time and a standard higher than the one that would be embodied in the 1975 federal law.
Ms. Ziegler joined the dozens of parents and other advocates who spent their days at the statehouse lobbying legislators; the Massachusetts law was passed in July 1972. Shortly after that, Ms. Ziegler and other parents founded the Federation for Children with Special Needs.
鈥淲e knew parents would need a lot of training and information鈥� about the new law, she said. 鈥淔rom day one, we were deluged with business.鈥�
Earlier this year, Massachusetts rewrote its special education law and eliminated its far-reaching 鈥渕aximum feasible benefit鈥� language. (鈥淢ass. Lawmakers Vote To Change Special Ed. Standard,鈥� Aug. 2, 2000.)
Eventually, Mary Ann Ziegler was placed in a regular classroom, where she learned academic subjects alongside her peers who did not have disabilities.
Her mother served as the executive director of the federation from 1975 to 1997 and traveled extensively to work with other parents and fight for better enforcement of special education laws. Ms. Ziegler is still active in local, national, and international special education issues from her home in Cambridge, Mass.
